IMPORTANT NOTICE: The NPDPSC requires that a Testing and Reporting form be signed before the prion protein gene sequencing results can be reported. Please submit a Testing and Reporting form with blood, frozen brain biopsy tissue, or frozen brain autopsy tissue.
In order to provide effective surveillance for CJD and other prion diseases, we strongly recommend that an effort be made to have an autopsy performed in all suspected cases of prion disease. We are available to coordinate autopsies, and all of our services are provided free of charge. Please contact one of our Autopsy Coordinators at 216-368-0587 for more information.